Nero

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This is the last picture I took of my kitty Nero when I was home last summer. When I think of him this is pretty much what comes to mind... my sweetheart snuggle kitty. I already miss him but I suspect it won't fully hit me until I go home for Christmas and he won't be there.

He and his sister, Emily -- who is doing well, have held a very special place for me. They were part of a litter of kittens my sister and I raised since they were three weeks old when their mother went missing. I was a college freshman and had late rehearsals which combined with my sister very early coffee shop schedule helped us feed the pack of six every three hours without it being too taxing on either one of us. Jayna had more feeding shifts during the day but my schedule made it so then she could sleep through the night and go to work.

I often think of those days of bottle feeding the babies. . . especially when they were just old enough to walk and learning to run. . . I called them goslings. This is one memory I would like to share.

When we couldn't watch them they would live in the hall bathroom with their litter box, their 'nest' and other necessities. We kept a night light on. Most distinctly I remember feeding them when I got home from rehearsals. First I would prep their formula and get everything ready in the kitchen then it was time to go get the babies-- my favorite part!

I would quietly crack open the bathroom door. In the dim light I could see a nest of fur and six tiny pairs of eyes all looking directly at me. For a second everyone was still.

"Gooooossssliiinnngs!" is what I would quietly call to them which would trigger the cutest stampede EVER!

They would follow me down the hall to the kitchen where they would be fed one by one starting with the smallest one (another orange boy) working up to the largest ones with feeding the undersized ones in between. I would sit at the table with my legs curled up onto the chair to avoid the over eager leg climbers. As the kitten became full they would form a new nest of fur in front of the refrigerator. Nero was the second to smallest kitten and he melted my heart. . . and he had a way of doing that over and over and over again.

I will always have an affinity for the big orange kitty who loves to snuggle.

Geiger Counter Fun

At first it sounded like we had crickets in our house... occasional little chirps. Then it abruptly sounded like we had several very angry crickets...

"That was your toothbrush." Dennis called from the bathroom.

Really what's the point of being radioactive if I don't get to play with a geiger counter? Well, to be honest I don't get to play with it much of course because being the source of the radioactivity makes impossible to measure anything else accurately. But others get to play so that's fun... except when I can't be in the same room... but when they provide a nice narrative of what they're scanning and how it's reading (we turned the beeping off after not too long-- when I got close it turned into one solid, very shrill, beep).


It was fun-- thanks Honey-- and educational! I learned a lot more about radioactivity because of all this.

taken this morning almost 48 hours after dose
set on the second to least sensitive setting, measuring the I-131 that is "sticking"

We went in for the scan at the hospital on the 5th. When we met with the doctors to review the results they asked how I was feeling and I told them that I was feeling quite well.

"Any guesses as to why that is?" surprisingly sarcastic for an oncologist.

We suspected as much when the scan was days away and I wasn't feeling exhausted-- there were a lot of thyroid cells left over and the little over achieving stragglers where producing enough hormones to keep me functional and feeling fine.

It kind of makes me sad to kill them -- very cruel but then I remember that (collectively) they fired the the first shot and that this is no time to get soft.

My dose of radioactive iodine [100 millicuries (mCi) of Iodine-131] was ready for me the next day. It has a half-life of 8 days and comes with restrictions to protect others, namely, Dennis.

To keep the loved ones safe it comes down to Proximity, Time, and Hygiene.

Here is my brief science lesson some of which I actually remember learning in high school:

There are lots of types of radiation (notably from the sun etc.). Like light and heat, the closer you are to the source the more potent it is.

Unlike light waves radioactive waves can travel through things including people --this is what we're trying to limit because as it's passing through it can damage one's molecules along the way which can have an accumulative effect of being bad.

Different radioactive particles/wave types have different strengths. I'm sending out beta (kind of a sissy) and gamma (more of a school yard bully, not a real thug) both of which drop off in strength significantly with distance. **Dennis noted different ways of personifying these particles. That the beta particles are pretty big schoolyard bullies but they can't climb fences or run very far and thus not much of a threat once you're out of noogie distance. He then said that the gamma particles are like a pipsqueak with a B-B gun in that they can hit you from further away but the chances of it really hurting much is slim... especially the further away you are.**

To illustrate this the medical physicist measured me directly after taking the dose up close I measured at about 500, at three feet away I measured roughly at 75, and at six feet away I measured a 4. This shows why proximity (aka cuddling) is bad.

It also stands to reason why the amount of time someone spends in proximity makes a difference and why the restriction recommendation is to keep seven feet away from the people you see all time but they say I can go out in uncrowded public now that it's been a couple days. (keep in mind the rooms of our house are about nine feet in each direction, making it challenging to hang out even in the same room)

The third area of consideration is hygiene. I'm emitting radioactivity all the time but I'm also secreting it-- mostly through urine, then through mucus, then through saliva. In this way it's like the flu and obsessive hand washing really helps cut down on the creation of new radioactive surfaces. The couch where I've been sleeping had very little radioactivity but the waste basket containing my discarded tissues was on fire (I made it a point to discard all of my tissues in the same basket). And since my computer keyboard measured clean it shows I've been keeping on top of the hand washing.

Other odd precautions that make sense:

Flushing toilet several times after each use
keeping toothbrush completely segregated
using my own tube of toothpaste
making a few dinners ahead of time (just so Dennis doesn't have to after he gets home... although he is more than capable and willing)
covering my sleeping couch with blankets that can be easily washed once I get to move back to the bed.
having my own dishes and disposable flatware
my own box of tissues and waste basket
my own hand towel and segregated laundry
no kissing (bummer!)
no cuddles (total bummer!)

So yes it's very inconvenient and not very fun but before the week is through I'll be able to go about business as usual. I'm going to add extra time to the limitations because we know that there are a lot of thyroid cells that the I-131 is sticking to.

Questions? I might revise this when I re-read this tomorrow and give Dennis a chance to point out any glaring errors. The logical thing would be to hold off on pushing the publish button until then-- but it's late and I want to get this up.

Doing Well

We have been enjoying our visit with my husband's mother. Yesterday I took her to Old Town Lansing where we got to look at cute little shops and walk along the river. and for dinner we roasted a turkey and had biscuits and mashed potatoes along with some other goodies-- It's been great to have Lois with us-- we really like her! (I have some nice pictures of her, and I'm glad to have them but I think she would be happier if I didn't post them on the internet even though the pictures are nice and she looks very nice in them)

So far we've gotten out of house every day and I hope that will get to continue as this afternoon we sticking to rainy day activities-- because today it turned into a rainy day.

Rainy day activities have consisted of sewing and reading... but mostly sewing. Between the two of us over two days we've finished 5 quilt blocks which is pretty sweet as I have many more to do and it feels good to whittle down the number of unfinished blocks.

"But Kristen, where did these quilt blocks come from in the first place?"

I'm so glad you asked! These are all from 'quilt block of the month' programs-- which are very fun and get you to try new things. It basically works like this: your local quilt shop sells you a pattern and fabric to make one quilt block (about five bucks) with the idea that you come back the next month with that block completed to receive another pattern w/fabric which you finish and bring back the following month so in theory you can make 12 coordinated quilt blocks for $5. This is great and fun... and just the beginning. Once they get you in the store there are all sorts of things they sell at you (it's a store, I don't hold it against them, I just don't have the cash). The most common, aside from all the little things you can buy that do one thing really well, is the "finishing kit" which gives you instructions and fabric to turn your block into a quilt top-- these typically cost at least $60 (so I never buy them) which sometimes does not contain the batting backing or binding that you will also need to truly finish. They also get you with 'bonus blocks' which cost a little extra and often look so nice and if you don't complete your previous month's block then it will cost another $5 to start up again.

And then sometimes you can get behind (like me right now) because inevitably life gets in the way. This problem is compounded by the fact that I still have blocks to do from last year's block-of-the-month program in Sacramento that I didn't get to because we got married and moved out of state (but I still had very nice people pick up my blocks for me). It's fun to see how different shops run their block-of-the-month programs. All in all I'm having a good time of it and learning new things but will probably take next year off with the hopes of finishing some of these quilts.

Since this afternoon I've felt considerably tired... a little more than I think is normal. We'll see if this is the beginning of the downhill slope or just a lazy rainy day.

A Quick Update

In recent days I've had a slightly noticeable influx of "how are you feeling?" It's not bad to ask but it reminded me that perhaps I should give an update since it has been a little while.

I feel fine, quite normal, it might take me a little longer to get going in the morning-- but I think that that is really more of a motivation issue than a chemical imbalance issue. I usually have been getting my first wind around 1:30 or 2pm-- but other days when I know I have something with a deadline to do and somewhere to be I've been able to get up and at them without a problem-- so I'm being lazy lately.

I stop taking the temporary replacements on the 20th. This is also the same day that Dennis' mom, Lois, is coming for a visit. We're looking forward to that-- we'll see how my energy goes. I could see it going either way-- down because I'll loose thyroid hormones or level or up because we'll have out-of-town company and I like to have visitors! ... especially when they are nice like Lois!)

I'm reminded that life is good by times like yesterday morning I had a visit from a cardinal just outside our kitchen window. At that moment I was really glad I hadn't yet pack up the humming bird feeder. Perhaps there is something to be said for procrastination? no.

Toadies!

Mid to Late Summer is when you find little toads-- it's too cold to find them now so I like to look at these pictures and think of July and tiny toads!

He's pretty little!

But not this little!

It's a good thing these guys hop around, otherwise you'd never see them! So tiny!

In this shot it easy to see just how new this toad is... he still looks like a tadpole.

On my first visit to Michigan, the July before we were married we saw tons of these little toads crossing the trail in the park behind the house. It's a pretty brief window when these guys are out and about in large numbers. I'm so glad we got to see them again this year.

And I hope we get to see them next year!

oh and you can click on the pictures to see their tininess even bigger!

Sew, What Have You Been Up To?

I haven't written about sewing for quite a while which is weird because I sew and haven't stopped sewing for any noteworthy length of time but just noticed that sewing has not been fairly represented. So let me present:

This is a my contribution to a wedding quilt for Katy and Andrew's Wonderful Wedding. Each guest was mailed a 10" (or maybe 12" ?) square of white muslin and asked to personalize it and mail it back. The mother's of the happy couple then covertly assembled and quilted it all and displayed it at the wedding. It was very sweet!

I had the idea buzzing around my head to make a quilt using only white fabric and create the pattern through texture and piecing alone. I would still like to do a whole quilt that way some day but it was great to actually do something along those lines. I also thought it would be fun to send back a square of white fabric... but I did end up writing on it since the directions said to be sure to include your name-- and I always follow directions.

It reads: "Wishing you both the best kind of happiness-- the kind that comes with love. from Kristen & Dennis"

Sappy I know but it's for a wedding and weddings are the best time to be sappy!

A great book that I used for reference and inspiration is The Art of Manipulating Fabric

Bee-Bop-a-Ree-Bop Rhubarb Pie

We have a neighbor down the street-- one of those guys that's lived on this street for the past 60 years. He used to own about five houses on the street (including the one we're renting now). Now we just owns three (not the one we're renting now) . He's a nice guy. He grows rhubarb but doesn't do much with it so this spring he asked us if we'd be interested. We said "yes." And he said "I'll be right back."

It was a lot of rhubarb he brought over so I made two pies using my apple pie recipe and delivered one back to him. See? It pays to be nice!

Wouldn't this be a good time for a piece of rhubarb pie?

... I think it's quite fitting that my 50th post is about pie...

Two Pints of Cream

We were invited to a waffle breakfast and I was asked to contribute whipped cream topping. And since these were friends that would appreciate it, I decided to whip it 'in house' and since these are really good friends that would appreciate it I picked up and extra pint and made butter.

So I learned that a pint of whipping cream will make a cup of butter and a cup of buttermilk (which I used for biscuits). It's fun to make butter but we'll have to wait until we have good friends that own a cow and so we get cream on the cheap since currently it's not exactly cost effective-- but still nice for special occasions-- and super tasty on waffles with their homemade blueberry syrup!

Time Line

This morning we met with the radiation oncologist for a consult and now we have a working time line for the first test to find straggling thyroid cells.

So I will continue to take my Cytomel (thyroid replacement hormone with short half-life) until the 20th of October (it's a Tuesday)... which means I have just under a month of feeling relatively well-- yay!

The Tuesday after that (the 27th) I get some lab work done and stop eating certain things and taking certain drugs (nothing I regularly consume was on those lists-- i.e. Slim-fast shakes).

On Monday the 2nd of November I do more blood work.

Then the next day (the third) I go to the center to take my little dose of radioactive iodine.

This allows us to do the scan on the 5th and review it with the oncologist. They say about 80% of patients still have thyroid cells on their first scan so I'm guessing I will too. If I do we will schedule a time when I can come back and get my big dose of radioactive iodine. They used to be able to give the big dose on the same day as the scan if needed but there is a shortage of radioactive iodine so I must wait until they have a pill for me. (they say it takes about a week)

After I take the big dose and live secluded for a few days I may start hormone replacements again-- yay!

So now you are updated! Thanks for reading.

New Update

We got back from the doctor's office with some news with which I am quite happy-- although not that much has changed.

First we have an appointment to see the radiation oncologist Wednesday morning (the very next happening Wednesday-- yay) and will find out more info about that process (how long will I be radioactive? will I leave something like a radioactive snail trail behind me? and important things like that)

Second and more exciting is that I got a prescription for a temporary hormone replacement. Here's the cool thing that I learned today:

Thyroid hormones have a pretty long half-life so it takes quite a while for them to naturally dissipate (about six weeks) taking the thyroid-less person on a slow gradual decline into a pit of despair. Where as this version of thyroid replacement has a short half-life so it dissipates roughly twice as fast as the stuff my thyroid left behind. So this is roughly how I think of it. This has no scientific bearing... it's just my current understanding.

The x axis is time in Weeks, the y axis is how I'm feeling (very measurable).
The red line is my perceived progression with taking the temporary hormone replacement, the blue line is my perceived natural progression.
The aqua shaded parfait illustrates bonus better feeling time, the brighter the better.

Hormone Dissipation: Feeling vs. Time

(channeling my father here)

So now I'm feeling just fine! It's nice to know that I can somewhat rely on feeling fine for a given time but there is still a lot that we'll just have to wait and see.